How is NARCRMS governed?
NARCRMS is a special project of the Consortium of Multiple Sclerosis Centers (CMSC) and is overseen by the CMSC Board of Governors (BOG). NARCRMS also has a Steering Committee (SC) which is comprised of key leaders from the field and sets policies for NARCRMS operations; commissions or initiates key questions to be addressed and formulated; reviews recommendations for tests, assessments, and other information to be included in the NARCRMS database; provides suggestions for data harmonization and data collection; develops strategies for expanding collaborations with other registries and health research groups; assists with developing funding strategies; and assists with developing data access policies. An Executive Committee was also implemented and is a subcommittee of the SC. The Executive Committee assists the NARCRMS Leadership and Operations Center with managing issues and making decisions related to the daily operation of the NARCRMS network. An organizational chart of NARCRMS can also be found at http://narcrms.org/organization-structure/.
Updated – 8/2/2016