What level of data will each stakeholder be able to view?
Sites will not enter any patient name, address, or phone number into the registry to preserve confidentiality; however, quarter and year of birth, and zip code (city) will be entered and will be available through the web-based reporting tool.
Participating Site Personnel – All data entered are de-identified and will be available through the reporting tools.
Industry/Pharmaceutical Representatives – All data entered are de-identified and will be available through the reporting tools.
Patients – General information about how the patient fares in relation to other patients enrolled in NARCRMS.
Updated – 5/9/2017