Will personally identifiable information (PII), e.g. DOB be visible to those viewing the NARCRMS data?
The majority of PII collected by NARCRMS will only be available to the site that enrolls the patient. Minimal PII (year/quarter of birth and zip code only) will be available to those viewing NARCRMS data. All stakeholders such as MS Centers, pharmaceutical companies, sites, and, in the future, governmental agencies, will have access to data in a de-identified reporting format such that the only PII shared with stakeholders/individuals accessing the database will be year/quarter of birth and zip code.
Updated – 5/9/2017