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“Three critical issues that hinder research into the cause, treatment, and prognosis of MS are the length of studies, the number of patients in studies, and the distance between patients and researchers. NARCRMS hopes to overcome these hurdles by allowing researchers on-line access to long-term, longitudinal, but deidentified (clinical, MRIs, outcomes, and eventually biologic) data from a large cohort of North American MS patients.”
The 21st Century is all about information sharing and personalized care through understanding of disease as a whole. With NARCRMS we will change everything we do about MS; diagnosis, treatment, monitoring for disease activity, and above all research and development of new agents for treatment and eventually prevention.
NARCRMS presents a unique opportunity to develop a very large comprehensive longitudinal study of a physician driven population of patients with MS for the benefit of the entire MS community.